Human Rights, Medical Research and Reproductive Cloning

Safe human reproductive cloning can only beadults and children who served as study participants.
achieved by conducting research and developingAt Willowbrook (an institution housing mentally
techniques that ensure the safety of the gestatingdisabled children) researchers studied the natural
mother and the health and welfare of the child. Thehistory and epidemiology of hepatitis by exposing
huge obstacle to designing safe procedures is thatchildren to live virus. Parents were made to
any such research will involve experimentation onunderstand that hard-to-come-by places at
humans.Willowbrook would be obtained if they allowed their
Medical experiments on humans are conducted all thechildren to be research subjects. The Tuskegee
time, but new drugs, procedures, and devices arestudy investigated the natural progression of syphilis
tested on animals first. Clinical drug trials are a classicin African-American sharecroppers who had the
example of human experimentation. Phase I clinicaldisease. Effective treatment for syphilis (penicillin)
trials are the "safety" phase of bringing a new drugwas withheld from these men in direct violation of
to market. Animal testing has been done, most oftentheir human rights as enumerated in the Nuremberg
in mice. Data have been reported and analyzed, andCode and Helsinki Declaration.
the FDA has permitted human testing to proceed.Revelations of the circumstances involved in the
But the side effects in humans and the properWillowbrook and Tuskegee studies led to the findings
dosages are completely unknown. Researchers makeof the Belmont Report and the establishment of
informed guesses so that deaths of studyOffice for Human Research Protections, part of the
participants are rare events. But clinical drug trials areU.S. Department of Health and Human Services. The
human experiments and people do die. In theBelmont Report enumerated four primary principles of
absence of detailed animal studies, experiments donebioethics -
directly on humans are viewed with great suspicion· Respect for persons (autonomy)
and are usually proscribed.· Beneficence
Taking steps to ensure the safety of medical· Nonmaleficence
research participants is a relatively new aspect of· Justice
public policy. As recently as the early 1970s, unethicalThe first attempt at introducing a cloned embryo into
medical experimentation was being done on humana woman's uterus will have no precedent. It will be a
subjects. Researchers in the infamous Tuskegeetotal shot in the dark, truly "boldly going where no
Syphilis Study (completed in 1972) and in theone has gone before". As a society we need to
notorious Willowbrook State School hepatitis studydetermine whether the risks of such a step justify
(terminated in 1966) violated the human rights of thethe potential benefits.