Prenatal Genetic Testing - Ethical Considerations

Many commentators are concerned that physiciansadjustment. If we are moral persons, Kantian ethics
have an agenda when they discuss results ofrequires us to respect all individuals. Our children are
prenatal testing with their patients. Often, physiciansnot means to our personal fulfillment, nor are they
have preconceived values regarding what should betrophies to be displayed in their precocity and
an exclusively patient-centered arena. For example,perfection. Children are ends in themselves, and if a
many physicians are predisposed to recommendchild is disabled she is deserving of as much respect
abortion when prenatal testing reveals the presenceas any other.
of genetic or structural anomalies that would result inBut respect for persons does not require a potential
disability.mother to knowingly bring a seriously disabled child
Such predispositions and preconceptions may beinto the world. For example, severe spinal bifida
distinguished from an objective approach in which thewould entail a lifetime of supervision and medical care.
physician provides in-depth background on theEven mild spina bifida can be burdensome and cause
specific potential disability and presents possibleserious problems later in life. Prenatal testing makes it
outcomes for the family, whether they choose topossible to avoid giving birth to a child so burdened.
abort or to continue the pregnancy. Using such anThe key issue is the availability of an authentic choice.
open-ended approach would "promote genuinePrenatal counseling should be as rigorous as any
reproductive choice and help families and society towell-designed informed consent process. Physicians in
flourish".1this field should have advanced training and expertise,
Of course, I agree that a just society mustbeyond the standard obstetrics curriculum.
appreciate and nurture the lives of all people. And ofThere is also the potential for financial abuse of the
course, many disabled persons live lives of greatsystem, as with any advanced technology. Until
personal satisfaction and value. I do not agree,prenatal testing becomes commoditized, that is,
however, that prenatal testing is in itself morallyfinancially available to all, the procedure should not be
troubling."standardized". Not every 28-year-old needs prenatal
Certainly, physicians should present both sides of thetesting. Obstetricians should not offer the procedure
question. Prospective parents need information,as a necessary part of being pregnant.
rather than a bulleted summary burdened with theFor many, prenatal testing is appropriate. The results
specialist's prejudices. I conjecture some prospectiveshould be presented objectively, informatively, and
parents might choose to continue with such athe parents empowered to make the choice that is
pregnancy if they were provided with a moreright for them.
complete analysis and report.1Asch A: Prenatal diagnosis and selective abortion. A
And certainly, society's attitudes need quite anchallenge to practice and policy.